The debate on rare diseases : a look at media response
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The debate on rare diseases : a look at media response

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The debate on rare diseases : a look at media response

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dc.contributor.author Bañón Hernández, Antonio Miguel es
dc.contributor.author Solves Almela, Josep es
dc.date.accessioned 2021-06-15T08:05:59Z
dc.date.available 2021-06-15T08:05:59Z
dc.date.issued 2016 es
dc.identifier.uri https://hdl.handle.net/10550/79742
dc.description.abstract Rare diseases (RDs) are those that affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose and very few have a treatment. This article explores how the media report on the arguments and counter-arguments regarding the access to drugs for these pathologies, with critical discourse analysis for the case of Duchenne muscular dystrophy. We concluded that, in times of crisis, the debate polarises around economic arguments (the price of drugs), reinforced by doubts about their healing effectiveness. es
dc.source Bañón Hernández, Antonio Miguel ; Solves Almela, Josep. The debate on rare diseases : a look at media response. En: Mètode Science Studies Journal: Annual Review, 6 2016: 208-213 es
dc.title The debate on rare diseases : a look at media response es
dc.type info:eu-repo/semantics/article en
dc.type info:eu-repo/semantics/publishedVersion en
dc.subject.unesco es
dc.identifier.doi es

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